News & Events2021-03-30T16:51:30+02:00

Read FIN’s latest updates, upcoming events and all news relating to Fabry Disease here

March 2021

#Break A Sweat For Fabry

March 31st, 2021|FIN Events, FIN News|

This year we challenge you to "Break A Sweat For Fabry" and post your picture on social media with the hashtag #BreakASweatForFabry. By breaking a sweat for people who have difficulties sweating or can't sweat at all, you can show your support and help raise awareness.

Welcome to the GRIT Study

March 19th, 2021|News|

Getting global Rare disease Insights through Technology Join the first Canadian app-based clinical trial for patient with metabolic disorders

ZoeInsights

March 19th, 2021|News|

ZoeInsights and Fabry International Network are teaming up to introduce the ZoeInsights app to individuals living with Fabry disease and their caregivers.

February 2021

Treatment needs and expectations for Fabry disease in France

February 19th, 2021|News|

development of a new Patient Needs Questionnaire In France, two associations actively represent Fabry patients, participate in and promote medical research: Association des Patients de la Maladie de Fabry (APMF, apmf-fabry.org) and Vaincre les Maladies Lysosomales (VML, www.vml-asso.org).

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