Industry News

News from Chiesi


Chiesi Global Rare Diseases and Protalix BioTherapeutics Announce European Commission Authorization of PRX-102 (pegunigalsidase alfa) for the Treatment of Fabry Disease

News from Chiesi2023-06-29T15:17:17+02:00

News from Sanofi


Sanofi dedicated their Fabry Awareness Month Campaign to highlighting the psychological impact of Fabry.

News from Sanofi2023-06-29T14:57:10+02:00

Fabry Outcome Survey- Final Report 2022


I am pleased to introduce the final Fabry Outcome Survey (FOS) report for patients and caregivers, which is based on data collected within FOS from 5 October 2001 to 30 September 2022. The aim of this registry, funded by Takeda, was to collect information on patients with Fabry disease. [...]

Fabry Outcome Survey- Final Report 20222023-06-29T11:44:31+02:00

News from Freeline


Freeline has made the difficult decision to not progress our Fabry disease program further

News from Freeline2023-04-07T16:08:54+02:00

News from Sanofi


Orphanet Journal of Rare Diseases recently published an in-depth history of the Sanofi Rare Disease Registries.

News from Sanofi2023-03-17T13:47:28+01:00

Sad news from Fabry Korea


It is with great sadness that we learned of the passing of BongKi Lim, Fabry Korea's chairman for the past 22 years. 

Sad news from Fabry Korea2023-03-17T13:41:33+01:00
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