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Latest news

Read FIN’s latest updates, upcoming events and all news relating to Fabry Disease

Fabry Findings Webinar

Fabry Findings Webinar -  October 27th, 2021 - 5.30pm - 6.30pm CEST We are happy to invite you to the first Fabry Findings Webinar with Dr Simon Korver who will present the findings from our first issue.!

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What is Fabry Disease?

Fabry disease is a rare, genetic condition which is estimated to affect around 1 in 100,000 people.

Fabry Numbers

Making An Impact In Our Communities

0mil
worldwide living with a rare disease
0+
Rare Diseases Identified
0%
Rare Disease are genetic

FIN members

Humanitarian Programs

To help extend treatment and specialty care to people throughout the world with rare diseases including lysosomal storage disorders you can rely on humanitarian programs.

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Young Adults Community

Fabry International Network is very committed to training the next generation of patient advocates and also providing a platform for young adults to get in contact with each other, to share their experiences and learn from each other.

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