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Latest news

Read FIN’s latest updates, upcoming events and all news relating to Fabry Disease

April is Fabry Awareness Month!

April is Fabry Awareness Month. This year, FIN highlights the unique strength within the lived experience of Fabry, through real stories of resilience, vulnerability, and everyday life.

What is Fabry Disease?

Fabry disease is a rare, genetic condition which is estimated to affect around 1 in 100,000 people.

Making an impact in the Fabry Community

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of empowering Fabry affected people
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Humanitarian Programs

To help extend treatment and specialty care to people throughout the world with rare diseases including lysosomal storage disorders you can rely on humanitarian programs.

FIN Resources Guide

A growing library of resources created to support, inform, and empower the Fabry community worldwide. This is a living guide, shaped by the community and evolving over time as new resources are shared.

Young Adults Community

Fabry International Network is very committed to training the next generation of patient advocates and also providing a platform for young adults to get in contact with each other, to share their experiences and learn from each other.

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