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Read FIN’s latest updates, upcoming events and all news relating to Fabry Disease

Fabry Awareness Month 2022

April 1st marks the start of Fabry Awareness Month. This year we focus our efforts on helping parents recognise Fabry symptoms in their children, with our campaign 'Cool Down Fabry'

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What is Fabry Disease?

Fabry disease is a rare, genetic condition which is estimated to affect around 1 in 100,000 people.

Fabry Numbers

Making An Impact In Our Communities

worldwide living with a rare disease
Rare Diseases Identified
Rare Disease are genetic

FIN members

Humanitarian Programs

To help extend treatment and specialty care to people throughout the world with rare diseases including lysosomal storage disorders you can rely on humanitarian programs.

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Young Adults Community

Fabry International Network is very committed to training the next generation of patient advocates and also providing a platform for young adults to get in contact with each other, to share their experiences and learn from each other.

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