Latest news

Read FIN’s latest updates, upcoming events and all news relating to Fabry Disease

What is Fabry Disease?

Fabry disease is a rare, genetic condition which is estimated to affect around 1 in 100,000 people.

Making an impact in the Fabry Community

of empowering Fabry affected people
Member organisations
Website Visitors

FIN members

Humanitarian Programs

To help extend treatment and specialty care to people throughout the world with rare diseases including lysosomal storage disorders you can rely on humanitarian programs.

Young Adults Community

Fabry International Network is very committed to training the next generation of patient advocates and also providing a platform for young adults to get in contact with each other, to share their experiences and learn from each other.

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