Reejeel

About Reejeel

This author has not yet filled in any details.
So far Reejeel has created 6 blog entries.

Zamplo

2021-05-20T15:46:18+02:00

Zamplo and Fabry International Network are teaming up to introduce the Zamplo app to individuals living with Fabry disease and their caregivers.

Zamplo2021-05-20T15:46:18+02:00

Treatment needs and expectations for Fabry disease in France

2021-05-20T15:46:20+02:00

development of a new Patient Needs Questionnaire In France, two associations actively represent Fabry patients, participate in and promote medical research: Association des Patients de la Maladie de Fabry (APMF, apmf-fabry.org) and Vaincre les Maladies Lysosomales (VML, www.vml-asso.org).

Treatment needs and expectations for Fabry disease in France2021-05-20T15:46:20+02:00

Learning from the Pandemic to Improve Care for Vulnerable Communities

2021-05-20T15:46:20+02:00

The Perspectives and Recommendations from the Rare Disease Community' Raquel Castro, Erwan Berjonneau and Sandra Courbier from Eurordis have published an editorial piece on the International Journal of Integrated Care entitled:

Learning from the Pandemic to Improve Care for Vulnerable Communities2021-05-20T15:46:20+02:00
Go to Top