Empowering Conversations
Charlotte2026-10-14T17:09:17+02:00Join us on 28 October 2026 at 5pm CET for an interactive Fabry webinar featuring a live doctor–patient conversation and practical tips for more confident healthcare discussions.
New White Paper: Dismissed, Unheard, Unseen – Mending the Cracks in Care for Females with Fabry
Charlotte2026-07-02T14:44:43+02:00The new white paper examines the unique challenges experienced by females with Fabry disease and presents recommendations to improve recognition, diagnosis, treatment, and long-term care.
Guidebook for Young Adults Living with Fabry Disease
Charlotte2026-06-11T14:03:31+02:00Created by and for young adults living with Fabry disease, Navigating Life with Fabry brings together practical information, lived experiences, and community wisdom to help young adults feel informed, empowered, and connected.
April is Fabry Awareness Month!
Charlotte2026-06-11T14:03:58+02:00April is Fabry Awareness Month. This year, FIN highlights the unique strength within the lived experience of Fabry, through real stories of resilience, vulnerability, and everyday life.
The FIN Resource Guide is here
Charlotte2026-03-30T11:56:13+02:00A curated collection of trusted tools, learning resources, and support materials to empower the global Fabry community.
FIN Fabry Expert Meeting April 24-25, 2026 Registration now open
Charlotte2026-03-30T11:56:04+02:00FIN Fabry Expert Meeting April 25-26, 2025 - registration now open!
Live Webinar Fabry Moments ‘Building Your Care Matters’
Charlotte2025-12-02T12:16:17+01:00Join us for the live webinar 'Building Your Care Matters' on Thursday November 13th at 5pm CET
Live Webinar “Fabry Through the Female Cycle”
Charlotte2025-12-02T12:16:28+01:00Join us for our upcoming webinar “Fabry Through the Female Cycle” with the inspiring Dawn Laney on Thursday November 20th, 2025 at 5pm-6pm CEST
Live Webinar Fabry Moments ‘Your Monitoring Matters’
Charlotte2025-12-02T12:16:40+01:00Join us for the live webinar 'Your Monitoring Matters' on Thursday October 23rd at 5pm CET
April is Fabry Awareness Month!
Charlotte2025-10-01T14:12:53+02:00April is Fabry Awareness Month! Join FIN in celebrating the #FabryHeroes!