Charlotte

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So far Charlotte has created 44 blog entries.

Focus on Fabry Leaders around the world

2022-09-28T16:51:29+02:00

Interview with Manjit Singh from the Lysosomal Storage Disorders Support Society (LSDSS) India When did you join your national patient association? I started the patient organisation in 2006 which finally was formed formally and registered in 2010 by 10 like minded parents who all are the founding members. What was the [...]

Focus on Fabry Leaders around the world2022-09-28T16:51:29+02:00

Focus on Fabry Leaders around the world

2022-06-30T11:04:04+02:00

Interview with Jack Johnson from FSIG (Fabry Support & Information Group) USA When did you join your national patient association? Well, since I founded the Fabry Support & Information Group with help from my mother and wife, it was from day one in 1996. What was the reason for joining? Forming [...]

Focus on Fabry Leaders around the world2022-06-30T11:04:04+02:00

News from Freeline

2022-04-13T15:50:45+02:00

Freeline will be progressing to the second dose cohort in the MARVEL-1 study immediately with first patient dosing expected in mid-2022

News from Freeline2022-04-13T15:50:45+02:00

Focus on Fabry Leaders around the world

2022-04-04T11:16:26+02:00

Interview with Alejandra Tornero from Alianza Lisosomal Argentina When did you join your national patient association? I am the founder of Alianza Lisosomal Argentina – ALA – and I lead the Alliance for Patients with Fabry, Gaucher and Pompe diseases. What was the reason for joining? The reason I joined is [...]

Focus on Fabry Leaders around the world2022-04-04T11:16:26+02:00
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