Created by and for young adults living with Fabry disease, Navigating Life with Fabry brings together practical information, lived experiences, and community wisdom to help young adults feel informed, empowered, and connected.
April is Fabry Awareness Month. This year, FIN highlights the unique strength within the lived experience of Fabry, through real stories of resilience, vulnerability, and everyday life.
A curated collection of trusted tools, learning resources, and support materials to empower the global Fabry community.
FIN Fabry Expert Meeting April 25-26, 2025 - registration now open!
Join us for the live webinar 'Building Your Care Matters' on Thursday November 13th at 5pm CET
Join us for our upcoming webinar “Fabry Through the Female Cycle” with the inspiring Dawn Laney on Thursday November 20th, 2025 at 5pm-6pm CEST
Join us for the live webinar 'Your Monitoring Matters' on Thursday October 23rd at 5pm CET
April is Fabry Awareness Month! Join FIN in celebrating the #FabryHeroes!
The Nordic Fabry patient organisations joined their forces and organised a Nordic patient meeting in sunny Copenhagen in early May.
