In December 2020 and March 2021, people with Fabry Disease, representing five European countries shared their perspectives on standard questionnaires often used to capture the experiences of people with Fabry Disease and the ideal profile of new tools, designed to more accurately record the Fabry Disease symptoms and impacts.

What are the challenges with current questionnaires when capturing symptoms and their impact and what could a new tool for Fabry Disease look like?

Have a look at the infographic to find out!

The two Patient Forum meetings were convened by Chiesi Rare Diseases and hosted by the Fabry International Network