AIAF has published an assessment of the various socio-economic aspects affecting families and patients living with Fabry disease was carried out by the Italian Anderson-Fabry Association. Starting from a survey administered in Italy in 2018, the study calculates the direct and indirect costs borne by the Italian National Health System and Fabry patients. Overall, there is good coverage by the National Health System for people with Fabry disease, other significant problems related to the costs of welfare services and the indirect costs of managing the disease for the patient and family members.

The study is published on the AIAF website