Empowering Conversations
Charlotte2026-10-14T17:09:17+02:00Join us on 28 October 2026 at 5pm CET for an interactive Fabry webinar featuring a live doctor–patient conversation and practical tips for more confident healthcare discussions.
New White Paper: Dismissed, Unheard, Unseen – Mending the Cracks in Care for Females with Fabry
Charlotte2026-07-02T14:44:43+02:00The new white paper examines the unique challenges experienced by females with Fabry disease and presents recommendations to improve recognition, diagnosis, treatment, and long-term care.
Guidebook for Young Adults Living with Fabry Disease
Charlotte2026-06-11T14:03:31+02:00Created by and for young adults living with Fabry disease, Navigating Life with Fabry brings together practical information, lived experiences, and community wisdom to help young adults feel informed, empowered, and connected.