FIN News

New White Paper: Dismissed, Unheard, Unseen – Mending the Cracks in Care for Females with Fabry

2026-07-02T14:44:43+02:00

The new white paper examines the unique challenges experienced by females with Fabry disease and presents recommendations to improve recognition, diagnosis, treatment, and long-term care.

New White Paper: Dismissed, Unheard, Unseen – Mending the Cracks in Care for Females with Fabry2026-07-02T14:44:43+02:00

Guidebook for Young Adults Living with Fabry Disease

2026-06-11T14:03:31+02:00

Created by and for young adults living with Fabry disease, Navigating Life with Fabry brings together practical information, lived experiences, and community wisdom to help young adults feel informed, empowered, and connected.

Guidebook for Young Adults Living with Fabry Disease2026-06-11T14:03:31+02:00
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