Throughout 2020, the COVID-19 pandemic posed many challenges for both FOS and the wider Fabry disease community. The members of the FOS Steering Committee and I would like to thank all patients and caregivers involved in the registry for their extremely valuable contributions and for their continued commitment to FOS during these challenging times. As we collect more information on Fabry disease, we can improve our understanding of this disease and aim to improve the care of patients in the future.
Patient organization representative on the FOS Steering Committee
Read the report here