News

Highlights from the Worldsymposium

Join us for our next webinar Wednesday February 17th, 2021 – 6-7pm CET Speaker: Dawn LaneyTopic: Highlights of the WORLDsymposium 2021 Link to join the webinar from your computer, tablet or smartphone: https://www.gotomeet.me/FabryInternationalNetwork/highlights-from-the-worldsymposium-2021 Access Code: 648-443-637 New to GoToMeeting? Get the app now and be ready when your first meeting starts: https://global.gotomeeting.com/install/648443637

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FIN Newsletter December 2020

The last newsletter of 2020!   In this edition we share a lot of information which I am sure you will find an interesting read. We would also like to draw your attention to the save the date for our virtual FIN Expert meeting in 2021. We look forward to seeing you all at the … Continue reading “FIN Newsletter December 2020”

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FIN Newsletter September 2020

Dear All We proudly present the latest FIN newsletter. Fabry International Network is very committed to training the next generation of patient advocates and also providing a platform for young adults to get in contact with each other, to share their experiences and learn from each other. Our initial plan was to invite young adults … Continue reading “FIN Newsletter September 2020”

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FIN Newsletter June 2020

Dear All We proudly present the latest FIN newsletter. On June 10th, we held our annual general members meeting, although we would have loved to meet in person, we were very happy to meet many of you online. In 2020 (and beyond) FIN will focus on projects and initiatives that bring patients together. Of course, … Continue reading “FIN Newsletter June 2020”

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Webinar on COVID-19 and Fabry Disease with expert panel May 20, 2020 – Recordings now available

FIN stands in solidarity with everyone affected by the COVID-19 pandemic. Our thoughts are with all of you who are affected by the virus. Therefore we hosted a webinar with an expert panel to inform you about COVID-19 and Fabry Disease and of course to answer your questions. The recording and slides are now available … Continue reading “Webinar on COVID-19 and Fabry Disease with expert panel May 20, 2020 – Recordings now available”

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