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Webinar on COVID-19 and Fabry Disease with expert panel

FIN stands in solidarity with everyone affected by the COVID-19 pandemic. Our thoughts are with all of you who are affected by the virus. Therefore we plan this webinar with an expert panel to inform you about COVID-19 and Fabry Disease and of course to answer your questions. Please do not hesitate to reach out … Continue reading “Webinar on COVID-19 and Fabry Disease with expert panel”

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FIN Newsletter March 2020

Dear All FIN stands in solidarity with everyone affected by the COVID-19 pandemic. Our thoughts are with all of you who are affected by the virus. Please do not hesitate to reach out if there is any way that our community can support you and your patients during this difficult and uncertain time. In the … Continue reading “FIN Newsletter March 2020”

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Sanofi Genzyme announced the start of their phase 4 study (B-CLEAR1, LPS15918), an open-label, multicenter, multinational, randomized, controlled, prospective clinical trial

Sanofi Genzyme announced the start of their phase 4 study (B-CLEAR1, LPS15918), an open-label, multicenter, multinational, randomized, controlled, prospective clinical trial. The primary objective is to assess the reduction of plasma lyso-GL-3 in each group 12 months after randomization. The secondary objectives are to assess the reduction of kidney podocyte GL-3 and endothelial skin cells … Continue reading “Sanofi Genzyme announced the start of their phase 4 study (B-CLEAR1, LPS15918), an open-label, multicenter, multinational, randomized, controlled, prospective clinical trial”

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FIN Newsletter December 2019

Dear All The last Newsletter of 2019! In this edition we continue to share a lot of information and announce a vacancy for the FIN Board. We would also like to draw your attention to our next FIN Expert meeting, next year in Amsterdam.  We look forward to seeing you all at the meeting. FIN … Continue reading “FIN Newsletter December 2019”

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FIN Newsletter October 2019

Dear All We hope your summer was as great as ours was! After relaxing holidays we are now back on track to continue to raise awareness about Fabry Disease! At the beginning of September FIN attended SSIEM in Rotterdam and we also presented our very first FIN booth. We met with colleagues, pharmaceutical partners and … Continue reading “FIN Newsletter October 2019”

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