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FIN Newsletter September 2020

Dear All We proudly present the latest FIN newsletter. Fabry International Network is very committed to training the next generation of patient advocates and also providing a platform for young adults to get in contact with each other, to share their experiences and learn from each other. Our initial plan was to invite young adults … Continue reading “FIN Newsletter September 2020”

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FIN Newsletter June 2020

Dear All We proudly present the latest FIN newsletter. On June 10th, we held our annual general members meeting, although we would have loved to meet in person, we were very happy to meet many of you online. In 2020 (and beyond) FIN will focus on projects and initiatives that bring patients together. Of course, … Continue reading “FIN Newsletter June 2020”

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Webinar on COVID-19 and Fabry Disease with expert panel May 20, 2020 – Recordings now available

FIN stands in solidarity with everyone affected by the COVID-19 pandemic. Our thoughts are with all of you who are affected by the virus. Therefore we hosted a webinar with an expert panel to inform you about COVID-19 and Fabry Disease and of course to answer your questions. The recording and slides are now available … Continue reading “Webinar on COVID-19 and Fabry Disease with expert panel May 20, 2020 – Recordings now available”

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Webinar on COVID-19 and Fabry Disease with expert panel – Recordings now available

FIN stands in solidarity with everyone affected by the COVID-19 pandemic. Our thoughts are with all of you who are affected by the virus. Therefore we hosted a webinar with an expert panel to inform you about COVID-19 and Fabry Disease and of course to answer your questions. The recording and slides are now available … Continue reading “Webinar on COVID-19 and Fabry Disease with expert panel – Recordings now available”

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FIN Newsletter March 2020

Dear All FIN stands in solidarity with everyone affected by the COVID-19 pandemic. Our thoughts are with all of you who are affected by the virus. Please do not hesitate to reach out if there is any way that our community can support you and your patients during this difficult and uncertain time. In the … Continue reading “FIN Newsletter March 2020”

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