New FIN President
Charlotte2023-11-24T15:09:59+01:00Lut de Baere resigned as FIN President, Mary Pavlou elected as successor!
News from Chiesi
Charlotte2023-06-29T15:17:17+02:00Chiesi Global Rare Diseases and Protalix BioTherapeutics Announce European Commission Authorization of PRX-102 (pegunigalsidase alfa) for the Treatment of Fabry Disease
News from Sanofi
Charlotte2023-06-29T14:57:10+02:00Sanofi dedicated their Fabry Awareness Month Campaign to highlighting the psychological impact of Fabry.
Fabry Outcome Survey- Final Report 2022
Charlotte2023-06-29T11:44:31+02:00I am pleased to introduce the final Fabry Outcome Survey (FOS) report for patients and caregivers, which is based on data collected within FOS from 5 October 2001 to 30 September 2022. The aim of this registry, funded by Takeda, was to collect information on patients with Fabry disease. [...]
News from Freeline
Charlotte2023-04-07T16:08:54+02:00Freeline has made the difficult decision to not progress our Fabry disease program further
April is Fabry Awareness Month!
Charlotte2023-06-29T15:58:54+02:00April is Fabry Awareness Month! Join FIN in celebrating the #FabryHeroes!
News from Sanofi
Charlotte2023-03-17T13:47:28+01:00Orphanet Journal of Rare Diseases recently published an in-depth history of the Sanofi Rare Disease Registries.
Sad news from Fabry Korea
Charlotte2023-03-17T13:41:33+01:00It is with great sadness that we learned of the passing of BongKi Lim, Fabry Korea's chairman for the past 22 years.
Evaluating the direct and indirect costs of Fabry disease
Charlotte2023-03-17T12:53:50+01:00Evaluating the direct and indirect costs of Fabry disease