News from Chiesi


Chiesi Global Rare Diseases and Protalix BioTherapeutics Announce European Commission Authorization of PRX-102 (pegunigalsidase alfa) for the Treatment of Fabry Disease

News from Chiesi2023-06-29T15:17:17+02:00

News from Sanofi


Sanofi dedicated their Fabry Awareness Month Campaign to highlighting the psychological impact of Fabry.

News from Sanofi2023-06-29T14:57:10+02:00

Fabry Outcome Survey- Final Report 2022


I am pleased to introduce the final Fabry Outcome Survey (FOS) report for patients and caregivers, which is based on data collected within FOS from 5 October 2001 to 30 September 2022. The aim of this registry, funded by Takeda, was to collect information on patients with Fabry disease. [...]

Fabry Outcome Survey- Final Report 20222023-06-29T11:44:31+02:00

News from Freeline


Freeline has made the difficult decision to not progress our Fabry disease program further

News from Freeline2023-04-07T16:08:54+02:00

News from Sanofi


Orphanet Journal of Rare Diseases recently published an in-depth history of the Sanofi Rare Disease Registries.

News from Sanofi2023-03-17T13:47:28+01:00
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