Sad news from Fabry Korea
Charlotte2023-03-17T13:41:33+01:00It is with great sadness that we learned of the passing of BongKi Lim, Fabry Korea's chairman for the past 22 years.
Evaluating the direct and indirect costs of Fabry disease
Charlotte2023-03-17T12:53:50+01:00Evaluating the direct and indirect costs of Fabry disease
News from Sangamo
Charlotte2023-03-17T10:55:07+01:00Chiesi Global Rare Diseases and Protalix BioTherapeutics Receive Positive CHMP Opinion for Pegunigalsidase Alfa for Treatment of Fabry Disease.
News from Chiesi
Charlotte2023-03-17T10:18:35+01:00Chiesi Global Rare Diseases and Protalix BioTherapeutics Receive Positive CHMP Opinion for Pegunigalsidase Alfa for Treatment of Fabry Disease.
Fabry Women’s Day is coming up!
Charlotte2023-03-17T10:58:03+01:00April 1st is International Fabry Women’s Day! Join us in celebrating this special day.
A solid partnership with strong ideas
Plantaflag2023-03-15T13:20:13+01:00Putting people with Fabry first: a talent that Amicus Therapeutics and FIN share. This commonality has ensured a strong partnership, spanning more than 16 years. Amicus Therapeutics is a pharma industry leader advancing the professional field of patient advocacy; it develops and delivers medicine for people living with rare diseases. Jayne C. Gershkowitz, Chief [...]
Putting Fabry on Australia’s agenda
Plantaflag2023-03-15T13:19:41+01:00Fabry disease is rather easy to test for and diagnose, yet there continues to be limited awareness about the disease. Fabry Australia, a FIN member , is on a quest to place it on the national agenda. Sheridan Campbell explains how her organisation raises awareness. Challenges Oftentimes people exhibit symptoms for many years, without [...]
Rare Diseases International Annual Membership Meeting
Charlotte2022-06-29T13:22:54+02:00Rare Diseases International Annual Membership Meeting
Fabry community leadership in an evolving landscape
Charlotte2022-06-28T13:51:34+02:00Fabry community leadership in an evolving landscape