Focus on Fabry Leaders around the world

2022-04-04T11:16:26+02:00

Interview with Alejandra Tornero from Alianza Lisosomal Argentina When did you join your national patient association? I am the founder of Alianza Lisosomal Argentina – ALA – and I lead the Alliance for Patients with Fabry, Gaucher and Pompe diseases. What was the reason for joining? The reason I joined is [...]

Focus on Fabry Leaders around the world2022-04-04T11:16:26+02:00

Focus on Fabry Leaders around the world

2021-12-20T14:03:51+01:00

Interview with Yifan Xu from Fabry China  When did you join your national patient association? I joined Fabry China in 2016. At that time the community was only founded since a few months. There were only 10 members. You could hardly say it was an organization, actually more like just a [...]

Focus on Fabry Leaders around the world2021-12-20T14:03:51+01:00
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