Zamplo
Reejeel2021-05-20T15:46:18+02:00Zamplo and Fabry International Network are teaming up to introduce the Zamplo app to individuals living with Fabry disease and their caregivers.
Fabry Women’s Day is coming up!
Reejeel2021-09-16T16:16:24+02:00April 3rd is International Fabry Women’s Day! Join us in celebrating this special day.
FIN Expert Meeting 2021
Reejeel2021-09-16T16:16:33+02:00Registration now open We are very pleased to invite you to our first online FIN Expert Meeting on April 24th, 2021!
Treatment needs and expectations for Fabry disease in France
Reejeel2021-05-20T15:46:20+02:00development of a new Patient Needs Questionnaire In France, two associations actively represent Fabry patients, participate in and promote medical research: Association des Patients de la Maladie de Fabry (APMF, apmf-fabry.org) and Vaincre les Maladies Lysosomales (VML, www.vml-asso.org).
Learning from the Pandemic to Improve Care for Vulnerable Communities
Reejeel2021-05-20T15:46:20+02:00The Perspectives and Recommendations from the Rare Disease Community' Raquel Castro, Erwan Berjonneau and Sandra Courbier from Eurordis have published an editorial piece on the International Journal of Integrated Care entitled: