The FIN Resource Guide is here
Charlotte2025-12-02T12:33:20+01:00A curated collection of trusted tools, learning resources, and support materials to empower the global Fabry community.
FIN Fabry Expert Meeting April 24-25, 2026 Registration now open
Charlotte2025-09-30T13:23:58+02:00FIN Fabry Expert Meeting April 25-26, 2025 - registration now open!
Live Webinar Fabry Moments ‘Building Your Care Matters’
Charlotte2025-12-02T12:16:17+01:00Join us for the live webinar 'Building Your Care Matters' on Thursday November 13th at 5pm CET
Live Webinar “Fabry Through the Female Cycle”
Charlotte2025-12-02T12:16:28+01:00Join us for our upcoming webinar “Fabry Through the Female Cycle” with the inspiring Dawn Laney on Thursday November 20th, 2025 at 5pm-6pm CEST
Live Webinar Fabry Moments ‘Your Monitoring Matters’
Charlotte2025-12-02T12:16:40+01:00Join us for the live webinar 'Your Monitoring Matters' on Thursday October 23rd at 5pm CET
April is Fabry Awareness Month!
Charlotte2025-10-01T14:12:53+02:00April is Fabry Awareness Month! Join FIN in celebrating the #FabryHeroes!
Nordic Fabry Patient Meeting May 2024
Charlotte2024-09-25T12:43:49+02:00The Nordic Fabry patient organisations joined their forces and organised a Nordic patient meeting in sunny Copenhagen in early May.
Live Webinar Arrhythmia in Fabry & what can we do about it?
Charlotte2025-06-19T15:43:30+02:00Join us for the live webinar with Dr Ashwin Roy 'Arrhythmia in Fabry & what can we do about it' on November 13th at 6pm CET
1st Regional Meeting Croatian Fabry Disease Patients
Charlotte2024-09-17T17:32:42+02:001st Regional Meeting of the Croatian Anderson-Fabry Disease Patients