The 28th of February was World Rare Disease Day (WRDD). Rare Diseases South Africa (RDSA) wanted to redefine what it means to be “RARE”. Because we all are! Can you touch your chin with your tongue, do a cartwheel or solve maths problems quickly? Maybe you can solve a Rubik’s cube in a flash? Rare traits aren’t limited. Every one of us has special qualities. RDSA called on South Africans to #ShareYourRare and be a part of #RarenessAwareness and join the global chain of lights to shine the light on “RARE” and generate change for the 350 million people worldwide living with a rare disease, their families, and carers.
Last year, over 500 buildings lit up all over the world in the Rare Disease Day colours during the Global chain of lights campaign. This year for Rare Disease Day 2022 we called on everyone to help the rare disease community be united to join the chain of lights across the world. Together we lit up our monuments, our public spaces, our buildings, homes, hospitals, and more to show our resilience and strength towards a better tomorrow. Collectively, we can improve the lives of the #1in15 South Africans living with a rare disease and the more local and national buildings and monuments illuminated, the bigger the impact!
We partnered with Sandton City Tower, The Voortrekker Monument, The Cape Wheel and in celebration of the 4.1 million South African’s living with rare diseases.