Monthly Archives: February 2021

Treatment needs and expectations for Fabry disease in France

Reejeel2021-05-20T15:46:20+02:00

development of a new Patient Needs Questionnaire In France, two associations actively represent Fabry patients, participate in and promote medical research: Association des Patients de la Maladie de Fabry (APMF, apmf-fabry.org) and Vaincre les Maladies Lysosomales (VML, www.vml-asso.org).

Treatment needs and expectations for Fabry disease in FranceReejeel2021-05-20T15:46:20+02:00

Learning from the Pandemic to Improve Care for Vulnerable Communities

Reejeel2021-05-20T15:46:20+02:00

The Perspectives and Recommendations from the Rare Disease Community' Raquel Castro, Erwan Berjonneau and Sandra Courbier from Eurordis have published an editorial piece on the International Journal of Integrated Care entitled:

Learning from the Pandemic to Improve Care for Vulnerable CommunitiesReejeel2021-05-20T15:46:20+02:00

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