Welcome to the Fabry International Network

The Fabry International Network mission is to be a global, independent network of Fabry Patient Organisations whose purpose is to collaborate,
communicate and promote best practices to support those affected by Fabry disease.

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The Fabry Condition

Fabry is a defective gene in the X-chromosome...

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Members of Our Network

Connect to others around the globe...

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Dates to look out for

Latest Fabry events...

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Get in touch

We are here for you. Contact us here...

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Latest Fabry News

Sanofi Genzyme announced the start of their phase 4 study (B-CLEAR1, LPS15918), an open-label, multicenter, multinational, randomized, controlled, prospective clinical trial

Sanofi Genzyme announced the start of their phase 4 study ...

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FIN Newsletter December 2019

Dear AllThe last Newsletter of 2019!In this edition we continue ...

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FIN Newsletter October 2019

Dear AllWe hope your summer was as great as ours ...

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FIN Newsletter June 2019

With the beginning of summer, we are very proud to ...

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FOS Annual Report 2017

Welcome to the 2017 Fabry Outcome Survey (FOS) Annual Report, ...

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