Welcome to the Fabry International Network

The Fabry International Network mission is to be a global, independent network of Fabry Patient Organisations whose purpose is to collaborate,
communicate and promote best practices to support those affected by Fabry disease.


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The Fabry Condition

Fabry is a defective gene in the X-chromosome...

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Members of Our Network

Connect to others around the globe...

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Dates to look out for

Latest Fabry events...

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Get in touch

We are here for you. Contact us here...

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Latest Fabry News

The SMC decision regarding Migalastat (Galafold)

The SMC decision regarding Migalastat (Galafold) was announced on 7 ...

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FIN Newsletter October 2016

The October 2016 Fabry Newsletter is now available and can ...

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Application open for Shire’s Humanitarian Programme

It is generally accepted that people affected by ultra-rare diseases across ...

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FIN expert meeting - save the date!

Save the date! Due to the success of the FIN Fabry ...

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The FIN newsletter is back!

We are so pleased to bring back our Fabry International ...

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