Welcome to the Fabry International Network

The Fabry International Network mission is to be a global, independent network of Fabry Patient Organisations whose purpose is to collaborate,
communicate and promote best practices to support those affected by Fabry disease.


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The Fabry Condition

Fabry is a defective gene in the X-chromosome...

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Members of Our Network

Connect to others around the globe...

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Dates to look out for

Latest Fabry events...

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Get in touch

We are here for you. Contact us here...

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Latest Fabry News

Ask a Fabry Expert in Fabry Awareness Month

This Fabry Awareness Month, you can join Rare2Aware live on ...

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FIN Newsletter March 2017

The latest FIN newsletter is now available to download here. This ...

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Book now for 5th Fabry Expert Meeting

5th Fabry Expert Meeting 19th – 20th May 2017 The Royal Olympic ...

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NICE recommend Migalastat for the treatment of Fabry

NICE recommend Migalastat for the treatment of Fabry disease for ...

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New clinical research study for Fabry from Protalix

The BALANCE Study is a clinical research study that will ...

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