Welcome to the Fabry International Network

The Fabry International Network mission is to be a global, independent network of Fabry Patient Organisations whose purpose is to collaborate,
communicate and promote best practices to support those affected by Fabry disease.




The Fabry Condition

Fabry is a defective gene in the X-chromosome...

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Members of Our Network

Connect to others around the globe...

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Dates to look out for

Latest Fabry events...

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Get in touch

We are here for you. Contact us here...

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Latest Fabry News

Clinical trials: Current opportunities in Fabry - available in 13 languages

Clinical trials: Current opportunities in Fabry - available in 13 ...

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FIN Newsletter December 2018

The last FIN newsletter of 2018 is available now. The ...

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Are you interested in sharing your experience with Fabry Disease?

If so, Fulcrum Research Group, an independent, third-party market research ...

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FIN Newsletter August 2018

The latest newsletter is now available and includes a word ...

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Lucerastat, a new oral therapy for Fabry patients in development

Idorsia Pharmaceuticals, a Swiss biotech company, is developing lucerastat, a ...

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