Welcome to the Fabry International Network

The Fabry International Network mission is to be a global, independent network of Fabry Patient Organisations whose purpose is to collaborate,
communicate and promote best practices to support those affected by Fabry disease.

 

 

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The Fabry Condition

Fabry is a defective gene in the X-chromosome...

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Members of Our Network

Connect to others around the globe...

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Dates to look out for

Latest Fabry events...

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Get in touch

We are here for you. Contact us here...

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Latest Fabry News

Lucerastat, a new oral therapy for Fabry patients in development

Idorsia Pharmaceuticals, a Swiss biotech company, is developing lucerastat, a ...

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FIN Newsletter March 2018

The March Newsletter available now.  Find out how you can ...

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Important Announcement by the Fabry International Network Board

As recently reported, Christine Lavery, President of Fabry international Network, ...

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It is with the heaviest of hearts that we announce ...

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