Welcome to the Fabry International Network

The Fabry International Network mission is to be a global, independent network of Fabry Patient Organisations whose purpose is to collaborate,
communicate and promote best practices to support those affected by Fabry disease.


The Fabry Condition

Fabry is a defective gene in the X-chromosome...

read more


Members of Our Network

Connect to others around the globe...

read more


Dates to look out for

Latest Fabry events...

read more


Get in touch

We are here for you. Contact us here...

read more

Latest Fabry News

FIN Newsletter December 2019

Dear AllThe last Newsletter of 2019!In this edition we continue ...

Read More

FIN Newsletter October 2019

Dear AllWe hope your summer was as great as ours ...

Read More

FIN Newsletter June 2019

With the beginning of summer, we are very proud to ...

Read More

FOS Annual Report 2017

Welcome to the 2017 Fabry Outcome Survey (FOS) Annual Report, ...

Read More

Subscribe to Our Newsletter