FIN Fabry Expert Meeting 2023

The Fabry International Network is pleased to announce that the FIN Fabry Expert Meeting 2023 will be held at the Van der Valk Schiphol in Amsterdam from April 21st, 2023 to April 23rd, 2023. The program will open with workshops for our members on April 21st  followed by two days of presentations on the Saturday and Sunday from professionals specializing in Fabry disease worldwide.
An exciting program is in the making and we look forward to seeing you there! Make sure to check this page regularly for more updates.
Accommodation and events will be at the Van der Valk Schiphol hotel in Amsterdam, which offers a free airport transfer from Schiphol airport every 40 minutes. The registration fee to participate in the expert meeting is €185, accommodation cost is €169 (single use) per night breakfast including, excluding city tax 6,05%.
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Join us for the FIN Fabry Expert Meeting 2023
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Program

We have an exciting program in the making!

Download the program here

Speakers

Frequently Asked Questions

Learn from Fabry Experts and meet other participants who share common concerns and experiences. The goal of this meeting is to educate Fabry patients and patient organisations. The program will open with workshops for our members on April 21st followed by two days of presentations on the Saturday and Sunday from professionals specializing in Fabry disease worldwide.

The meeting is intended for our member organisations; people living with Fabry, family members, parents of kids with Fabry, caregivers and patient advocates. Individuals working with Fabry disease such as healthcare providers and pharmaceutical industry representatives who FIN has established a partnership with are welcome. Industry representatives can be present at the meeting but will not be allowed to participate in the workshops and meetings organised exclusively for our members.

The registration fee to participate in the expert meeting is €185, accommodation cost is €169 (single use) per night breakfast including, excluding city tax 6,05%. Travel expenses to the meeting and back home are not included. FIN will provide a travel bursary of €100 for Europe including Russia & Turkey and €250 overseas for one delegate from each member patient organisation, plus three nights’ accommodation with breakfast on the 20th, 21st and 22nd of April 2023 including all meals.

Accommodation and events will be at the Van der Valk Schiphol hotel in Amsterdam: which offers a free airport transfer from Schiphol airport every 40 minutes.

Yes, there will be a live stream of the meeting for those that wish to view the presentations online. There will be no registration fee for the virtual option.

This meeting is a great educational and networking opportunity that benefits everybody. The registration fee goes toward the cost of meals throughout the meeting, facility, plus many additional meeting expenses.

All rooms accommodate up 2 people. The room cost is €169 excluding tourist tax of 6.05% for single use, €179 for double use breakfast included.

To register, click the registration button and complete the on-line registration form before February 7th, 2023.

The registration deadline is February 7, 2023.

If you wish to extend your stay, you can, please share this information in the registration form and we will work with the hotel to confirm this. Note that these accommodation costs are to be paid directly to the hotel.

Staying at the same hotel the meeting is held at, is important and lends itself to the very purpose of the meeting.

The registration fee will be the same and there is no adjustment for days not attended.

If you cancel your registration by April 9th, 2023  there will be no cancellation costs.  After that date, confirmed registration and accommodation will be charged.

An invoice (per organisation) will be generated and provided to you after the event via email.

We are committed to maintaining the health and safety of all FIN Fabry Expert Meeting 2023 attendees, and we will continue to monitor the evolving situation in relation to the impact COVID-19, therefore certain events may be postponed or cancelled. Rest assured that any necessary safety procedures will be in place to ensure your safety.

Contact us at coordinator@fabrynetwork.org and we will be happy to assist you.

With the support of