With the beginning of summer, we are very proud to present you with the latest news from FIN! This newsletter will serve as good reading material during your upcoming vacation! We hope you enjoy reading it! Read more
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News
Welcome to the 2017 Fabry Outcome Survey (FOS) Annual Report, which provides an overview of FOS as of 5 January 2018. This report includes details of the FOS Steering Committee as well as a summary of patient demographics and the publications that have been developed using the data collected in the registry. FOS (ClinicalTrials.gov identifier: … Continue reading “FOS Annual Report 2017”
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The first FIN newsletter of 2019 is available now! Spring is upon us and we are very proud to present you with the latest news from FIN! Read it now
Read MoreClinical trials: Current opportunities in Fabry – available in 13 languages Clinical trials are an essential step to make new medicines, so they help improve the health and quality of life of people with Fabry. Clinical trials test that new therapies are safe, how well they work and if they are better than existing treatments. … Continue reading “Clinical trials: Current opportunities in Fabry – available in 13 languages”
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The last FIN newsletter of 2018 is available now. The President looks back over the last year, a mother gives her personal experience of living with Fabry in Poland and the draft programme for the 2019 Fabry Expert Meeting is revealed. Read it now
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