Fabry Members

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Fabry patient organisations around the world

 

Australia
Fabry Australia
www.fabry.com.au

Austria
Gesellschaft Fur Mukopolysaccharidosen und Ahnliche Erkrankungen
www.mps-austria.at

Argentina
Asociacion de Pacientas de Enfermedadas Lisosomales de la Republica Aregentina
www.apelra.org.ar

Belgium
Belgian Organisation for Children and adults with a Metabolic Disease
www.boks.be

Brazil
Brazilian Association of patients with Fabry disease and their families
www.fabry.org.br

Bulgaria
National Association of MPS Bulgaria
Tel: +359 898 688 767

Canada
Canadian Fabry Association
www.fabrycanada.com

Chile
Fundacion Chilena de Pacientas de Enfermedadas Lisosomales
Tel: +56 02 436 81 47

China
China Fabry Disease Community
www.chinafabry.com

Columbia
Associacion Colombiana de Pacientes con Enfermedadas de Deposito Lisosomal
www.acopel.org.co

Croatia
Croatian Alliance for Rare Diseases
www.rijetke-bolesti.hr

Czech Republic
Society for MPS
www.mukopoly.cz

Denmark
Danish Fabry Group
www.fabry.dk

Ecuador
Funcacion Ecuatoriana de Pacinetes con Enfermedadas de deposito Lisosomal
Tel: +593 22 699069

Estonia
MPS Society Estonia
Postal address:
Ande Martin, MPS Society (Estonia)
Nisu 25-9, Tallinn, 0317, ESTONIA

Egypt
IEMFA – Inborn Error of Metabolism Friends Association
Contact person: Dr Laila Selim
Email: lselim83@gmail.com

Finland
Finnish Fabry Association
www.fabry.ms-liitto.fi

France
Vaincre les Maladies Lysosomales (VML)
www.vml-asso.org
Association des Patients de la Maladie de Fabry
www.apmf-fabry.org

Germany
Morbus Fabry Selbsthilfegruppe e.V.
www.fabry-selbsthilfegruppe.de
Morbus Fabry interessengemeinschaft
www.morbus-fabry-ig.de

Greece
The Greek Alliance of Rare Disease
www.pespa.gr
Greek Lysosomal Association “Solidarity”
www.greeklysosomal.blogspot.gr

Hong Kong
Hong Kong Mucopolysaccharidoses & Rare Genetic Diseases
www.hk-mps.com

Hungary
Magyar Mukopoliszaccharidozis Tarsasag
www.mpstarsasag.hu
The Hungarian Foundation for Patients with Fabry Disease
www.fabryalapitvany.hu

India
LSD Support Society
www.lsdss.org/

Indonesia
MPS and LSD Indonesia
www.ferofoundation.com
Indonesia IEM Parent Society
Contact person: Peni Parwati
Email:peni.parwati@ndso.astra.co.id

Iran
Charity of Foundation for Rare Diseases
www.cffsd.org

Ireland
Fabry Ireland
www.fabryireland.ie

Italy
Gruppo Italiano Pazienti Fabry
www.fabryonlus.org

Japan
The Japanese Society of the Patients and the Families with MPS
www.mps-japan.org
Japan Fabry disease patients and family association
www.fabrynet.jp
FabryNEXT
www.fabry-next.com

Korea
MPS Patient Organisation
www.mps.x-y.net

Luxembourg
Association Luxembourgeoise d’aide pour les personnes Atteindes de maladies Neuro-Musculaires et de maladies rares
www.alan.lu

Malaysia
Malaysia Metabolic Society
www.mms.my

The Netherlands
Fabry Support & Informatie Groep Nederland
www.fabry.nl

New Zealand
Lysosomal Diseases New Zealand
www.ldnz.org.nz

Norway
Fabry Patients Organisation
www.fabry.no/

Peru
Asociacion Peruana de Pacientes con Enfermedadas de deposito Lisosomal
Tel: +51 2611757

Philippines
Philippine Society for Orphan Disorders, Inc
www.psod.org.ph

Poland
Association of families with Fabry disease
www.fabry.org.pl/

Portugal
Associação Portuguesa das Doenças do Lisosoma
www.aplisosoma.org

Romania
Romanian Foundation For Lysosomal Diseases – FRBL
 Contact: Teodora Dumitriu by
Email: tfdum@yahoo.com

Russia
Russia Fabry Association
www.dorogakzhizni.nethouse.ru

Russia
Fabry Russia
www.fabryrussia.ru

Singapore
Rare Genetics Network
www.raregenes.org

Slovakia
Zdruzenie Ojedinelych Genetickych Ochoreni
Rare Diseases Patient society
www.zogo.sk

Slovenia
Slovenian Fabry association
www.sb-sg.si

Spain
Spanish Fabry MPS Association
www.mpsesp.org
ADAC – Asociación para las Deficiencias que afectan al Crecimiento y al Desarrollo
www.asociacionadac.com

South Africa
Rare Disease Society of South Africa
www.rarediseases.co.za
Gaucher Society South Africa
www.gaucherssa.co.za

Sweden
Patientföreningen för Fabrysjuka i Sverige
www.fabry.se

Switzerland
Fabry Suisse
www.fabrysuisse.ch

Taiwan
Taiwan Association of Fabry Disease
www.rare.org.tw
Taiwan MPS Society
7F, 16, Lane 102, Ho-Chiang Street.
Taipei 10478, Taiwan, R.O.C

Turkey
Turkish MPS Society
www.mpsturk.org

Uruguay
Asociacion Uruguay de Pacientes con Enfermedadas Lisosomales
Tel: + 598 99 682 500

USA
Fabry Support and Information Group
www.fabry.org
National Fabry Disease Foundation
www.fabrydisease.org

United Kingdom
MPS Society UK
www.mpssociety.org.uk