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Fabry patient organisations around the world

Australia
Fabry Australia
www.fabry.com.au

Austria
Gesellschaft Fur Mukopolysaccharidosen und Ahnliche Erkrankungen
www.mps-austria.at

Argentina
Asociacion de Pacientas de Enfermedadas Lisosomales de la Republica Argentina

APELRA Facebook

Belgium
Belgian Organisation for Children and adults with a Metabolic Disease
www.boks.be

Brazil
Brazilian Association of patients with Fabry disease and their families
www.fabry.org.br

Bulgaria
National Association of MPS Bulgaria
Tel: +359 898 688 767

Canada
Canadian Fabry Association
www.fabrycanada.com

Chile
Fundacion Chilena de Pacientas de Enfermedadas Lisosomales
www.fundacionfelch.cl

China
China Fabry Disease Community
www.chinafabry.com

Columbia
Associacion Colombiana de Pacientes con Enfermedadas de Deposito Lisosomal
www.acopel.org.co

Croatia
Croatian Alliance for Rare Diseases
www.rijetke-bolesti.hr

Czech Republic
Society for MPS
www.mukopoly.cz

Denmark
Danish Fabry Group
www.fabry.dk

Ecuador
Funcacion Ecuatoriana de Pacinetes con Enfermedadas de deposito Lisosomal
www.fepeldasha.org

Estonia
MPS Society Estonia

Egypt
IEMFA – Inborn Error of Metabolism Friends Association
Contact person: Dr Laila Selim
Email: lselim83@gmail.com

Finland
Finnish Fabry Association
www.fabry.ms-liitto.fi

France
Vaincre les Maladies Lysosomales (VML)
www.vml-asso.org

Association des Patients de la Maladie de Fabry
www.apmf-fabry.org

Germany
Morbus Fabry Selbsthilfegruppe e.V.
www.fabry-selbsthilfegruppe.de
Morbus Fabry interessengemeinschaft
www.morbus-fabry-ig.de

Greece
The Greek Alliance of Rare Disease
www.pespa.gr
Greek Lysosomal Association “Solidarity”
www.greeklysosomal.blogspot.gr

Hong Kong
Hong Kong Mucopolysaccharidoses & Rare Genetic Disease

www.mps.org.hk

Hungary

The Hungarian Foundation for Patients with Fabry Disease
www.fabryalapitvany.hu

India
LSD Support Society
www.lsdss.org

Iran
Charity of Foundation for Rare Diseases
www.cffsd.org

Ireland
Fabry Ireland
www.fabryireland.ie

Italy
Association Italian Anderson Association Fabry (AIAF)
www.aiaf-onlus.org

Japan
Japan Fabry disease patients and family association (JFA)
www.fabrynet.jp

Korea

Fabry Korea
www.fabrykorea.com

Luxembourg
Association Luxembourgeoise d’aide pour les personnes Atteindes de maladies Neuro-Musculaires et de maladies rares
www.alan.lu

Lithuania

Gyvastis

www.donoras.lt

Malaysia
Malaysia Lysosomal Disease Association
www.mymlda.com

The Netherlands
Fabry Support & Informatie Groep Nederland
www.fabry.nl

New Zealand
Lysosomal Diseases New Zealand
www.ldnz.org.nz

Norway
Fabry Patients Organisation
www.fabry.no

Peru
Asociacion Peruana de Pacientes con Enfermedadas de deposito Lisosomal

Appel Facebook

Philippines
Philippine Society for Orphan Disorders
www.psod.org.ph

Poland
Association of families with Fabry disease
www.fabry.org.pl

Portugal
Associação Portuguesa das Doenças do Lisosoma
www.aplisosoma.org

Romania

Romanian Fabry Association

www.fabryromania.ro

Russia
Russia Fabry Association
www.dorogakzhizni.nethouse.ru

Russia
Fabry Russia
www.fabryrussia.ru

Singapore
Rare Disease Society
www.rdss.org.sg

Slovakia
Zdruzenie Ojedinelych Genetickych Ochoreni
Rare Diseases Patient society
www.zogo.sk

Slovenia
Slovenian Fabry association
www.sb-sg.si

Spain
Spanish Fabry MPS Association
www.mpsesp.org

South Africa
Rare Disease Society of South Africa
www.rarediseases.co.za

Sweden
Patientföreningen för Fabrysjuka i Sverige
www.fabry.se

Switzerland
Fabry Suisse
www.fabrysuisse.ch

Taiwan
Taiwan Association of Fabry Disease
www.rare.org.tw

Tunisia

Association Tunisienne des Maladies Lysosomales

www.atml.tn

Turkey
Turkish MPS Society
www.mpsturk.org

Uruguay
Asociacion Uruguay de Pacientes con Enfermedadas Lisosomales

AUPEL Facebook

USA
Fabry Support and Information Group
www.fabry.org
National Fabry Disease Foundation
www.fabrydisease.org

United Kingdom
MPS Society UK
www.mpssociety.org.uk

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