FIN Newsletter March 2019

The first FIN newsletter of 2019 is available now! Spring is upon us and we are very proud to present you with the latest news from FIN! Read it now

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Clinical trials: Current opportunities in Fabry – available in 13 languages

Clinical trials: Current opportunities in Fabry – available in 13 languages Clinical trials are an essential step to make new medicines, so they help improve the health and quality of life of people with Fabry. Clinical trials test that new therapies are safe, how well they work and if they are better than existing treatments. … Continue reading “Clinical trials: Current opportunities in Fabry – available in 13 languages”

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Cover of Dec 2018 newsletter

FIN Newsletter December 2018

The last FIN newsletter of 2018 is available now. The President looks back over the last year, a mother gives her personal experience of living with Fabry in Poland and the draft programme for the 2019 Fabry Expert Meeting is revealed. Read it now

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Tablet

Are you interested in sharing your experience with Fabry Disease?

If so, Fulcrum Research Group, an independent, third-party market research firm, is seeking Fabry patients or their caregivers for a market research study. Specifically, the research will aim to gain a better understanding of individual patients’ experiences and opinions about: Their journey from initial symptoms to present day (through the diagnostic process, experiences with healthcare … Continue reading “Are you interested in sharing your experience with Fabry Disease?”

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Fabry Newsletter Aug 2018 cover image

FIN Newsletter August 2018

The latest newsletter is now available and includes a word from the new FIN President, Lut De Baere, as well as a round up of the 6th FIN Fabry Expert meeting in Lithuania, latest news from the pharma industry and information from Japan Fabry Disease Patients and Family Association. Read here

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