FIN Newsletter September 2020

Dear All

We proudly present the latest FIN newsletter.

Fabry International Network is very committed to training the next generation of patient advocates and also providing a platform for young adults to get in contact with each other, to share their experiences and learn from each other. Our initial plan was to invite young adults to a face-to-face event this year. Due to the global pandemic, we have decided not to organise a face-to-face meeting but instead plan a series of webinars in September, October and November.

We have successfully hosted the first webinar on Sept 12th, read all about on page 3!

The fourth issue of Fabry Findings is now released! 

In order to make this newsletter as informative as possible we always welcome news and information from you as a caregiver, patient, patient organization and patient representative. Please send it to

Please enjoy reading the FIN newsletter!

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