FIN Newsletter June 2020

Dear All

We proudly present the latest FIN newsletter.

On June 10th, we held our annual general members meeting, although we would have loved to meet in person, we were very happy to meet many of you online.

In 2020 (and beyond) FIN will focus on projects and initiatives that bring patients together. Of course, this is part of FIN’s mission. We feel now more than ever, there is a need for patients to be part of a wider community. We aim to do so through sharing best practices, facilitating connections between Fabry patients to help combat isolation and supporting local initiatives.

In case you missed the AGM, we have included most of the information in this newsletter.

The new dates for the FIN Expert meeting in 2021 are now confirmed. Make sure you save the date!

In order to make this newsletter as informative as possible we always welcome news and information from you as a caregiver, patient, patient organization and patient representative. Please send it to info@fabrynetwork.org

Please enjoy reading the FIN newsletter!

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