Month: May 2020

FIN stands in solidarity with everyone affected by the COVID-19 pandemic. Our thoughts are with all of you who are affected by the virus. Therefore we hosted a webinar with an expert panel to inform you about COVID-19 and Fabry Disease and of course to answer your questions. The recording and slides are now available … Continue reading “Webinar on COVID-19 and Fabry Disease with expert panel May 20, 2020 – Recordings now available”

Dear Patient We are happy to inform you that the anonymous online survey to asses “Perception of Social Assistance in the Daily Life of Rare Metabolic Patients” has been launched in 10 languages. Danish: https://www.surveymonkey.com/r/356G3FC Dutch: https://www.surveymonkey.com/r/3P6MGJ2 English: https://www.surveymonkey.com/r/3KG2WMN French: https://www.surveymonkey.com/r/36HXGMC German: https://www.surveymonkey.com/r/GLRWFML Greek: https://www.surveymonkey.com/r/G88DBN3 Italian: https://www.surveymonkey.com/r/35V3T9V Lithuanian: https://www.surveymonkey.com/r/3ZNSCDR Portuguese: https://www.surveymonkey.com/r/GKTCFBT Spanish: https://www.surveymonkey.com/r/G85MGCT Deadline: 07/06/2020 … Continue reading “SURVEY – Perception of Social Assistance in the Daily Life of Rare Metabolic Patients”

Following our first webinar last month, Fabry International Network is inviting you again to our second webinar; ‘COVID-19 and Fabry Disease’ with our Fabry expert panel: Professor Dominique Germain and Dr Alberto Ortiz. This webinar is an opportunity to be updated directly by Fabry experts and of course answer your questions. Hosted by Fabry International … Continue reading “Webinar COVID-19 and Fabry Disease with expert panel May 20th, 2020 – 7PM CEST”