FIN Newsletter October 2019

Dear All

We hope your summer was as great as ours was!

After relaxing holidays we are now back on track to continue to raise awareness about Fabry Disease! At the beginning of September FIN attended SSIEM in Rotterdam and we also presented our very first FIN booth. We met with colleagues, pharmaceutical partners and attended lots of interesting sessions.

The Board is delighted to share with you some very good news from Poland! The situation in Poland has been addressed in many of our past newsletters and it´ll be very exciting for all readers to see that they finally have the reimbursement issue solved. Read the full story on page 6.

We are also very happy to share with you the outcome of the workshops that were held during the Expert meeting in Barcelona. At the moment we are already focusing on the organization and program for the 2020 meeting! We will be sharing more information soon!

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