FIN Newsletter June 2019

With the beginning of summer, we are very proud to present you with the latest news from FIN! This newsletter will serve as good reading material during your upcoming vacation! We hope you enjoy reading it! Read more

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FOS Annual Report 2017

Welcome to the 2017 Fabry Outcome Survey (FOS) Annual Report, which provides an overview of FOS as of 5 January 2018. This report includes details of the FOS Steering Committee as well as a summary of patient demographics and the publications that have been developed using the data collected in the registry. FOS (ClinicalTrials.gov identifier: … Continue reading “FOS Annual Report 2017”

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FIN Newsletter March 2019

The first FIN newsletter of 2019 is available now! Spring is upon us and we are very proud to present you with the latest news from FIN! Read it now

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Clinical trials: Current opportunities in Fabry – available in 13 languages

Clinical trials: Current opportunities in Fabry – available in 13 languages Clinical trials are an essential step to make new medicines, so they help improve the health and quality of life of people with Fabry. Clinical trials test that new therapies are safe, how well they work and if they are better than existing treatments. … Continue reading “Clinical trials: Current opportunities in Fabry – available in 13 languages”

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