Important Announcement by the Fabry International Network Board

Christine Lavery with PAL award

As recently reported, Christine Lavery, President of Fabry international Network, sadly passed away on Tuesday 19th December 2017, in hospital, surrounded by her family following a brief illness.

Christine was a formidable lady who cared passionately for every MPS and FIN member both past and present. Her efforts saw her work with patients, families and professionals extend all over the world as she dedicated her life to improving the knowledge, advocacy support and clinical outlook for patients with MPS and related diseases. We are all deeply saddened at the tragic loss of her life.

With immediate effect The FIN Board of Directors have voted Jack Johnson as Acting President and Lut De Baere as Acting Vice President of the Fabry International Network to be reviewed at the June AGM.

Christine was very passionate about the annual FIN Expert meeting and I am pleased to announce that this year’s meeting in Vilnius, Lithuania on the 8th and 9th June 2018 will continue as she had planned.

Kind regards

The Fabry international Board of Trustees

Subscribe to Our Newsletter