Ask a Fabry Expert in Fabry Awareness Month

Rare 2 Aware

This Fabry Awareness Month, you can join Rare2Aware live on Twitter to explore the impact that Fabry disease has on patients and their families, and to discuss the importance of talking to your relatives about your Fabry family tree.


Thursday 20th April at 3pm BST


Use #letstalkfabry to be part of the conversation or just to follow. You can submit questions for the expert panel at any time before or during the live Q&A.


The expert panel includes:
Dr Ricardo Reisin – Neurologist, Hospital Británico de Buenos Aires, Argentina
Dr Nick Barratt – Genealogist, UK
Anna Meriluoto – Patient Representative, Fabry International Network, Finland

Follow @rare2aware and @fabryintnetwork on Twitter for the latest updates!


Download the flyer here.

Subscribe to Our Newsletter