Application open for Shire’s Humanitarian Programme

It is generally accepted that people affected by ultra-rare diseases across the globe face challenges getting reimbursed high cost market approved treatments. Like many LSD patient organisations across the World the MPS Society receives 100–200 emails each year from patients and their families pleading for help to access enzyme replacement therapy (ERT) for MPSI, MPSII, MPSIVA, MPSVI and Fabry … Continue reading “Application open for Shire’s Humanitarian Programme”

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FIN expert meeting – save the date!

Save the date! Due to the success of the FIN Fabry Expert meeting held this year in Tokyo, Japan, a date has now been secured for the 5th Fabry International Network Meeting 19th & 20th May 2017 Athens, Greece Further details to follow  

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