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Facing Fabry Together Film

Facing Fabry Together Film was launched by Genzyme on the International Rare Disease Day 2013. The film depicts four families from Canada, Brazil, Germany, and France, separated by geography but bound by the common experience of living with Fabry disease. These families share their childhood challenges, their journeys to diagnosis, and their hopes for the … Continue reading “Facing Fabry Together Film”

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butterfly

1000 Butterflies for Fabry

Make your own Origami Butterfly and raise awareness for women with Fabry Latest news from the Spanish Fabry Patient Association www.fabryahora.com A new communication campaign is to be launched in Spain to raise Awareness of Fabry disease in woman. The new initiative called ‘1000 Butterflies for Fabry’ will be posted on the Fabry Ahora website … Continue reading “1000 Butterflies for Fabry”

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Helping people affected by Fabry disease
Information and support

April is Fabry International Awareness Month

Fabry International Network is delighted to announce that the Fabry Support Group Australia has officially registered April as the International Fabry Awareness Month. For some time, few Fabry Patient Organisations have been thinking about finding a month dedicated to creating more awareness of the Fabry disease. In the US, Jack Johnson from the Fabry Information and … Continue reading “April is Fabry International Awareness Month”

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